A number of organisations, programmes and projects have developed surveys to understand the extent to which patients felt involved in decisions about their treatment and care and how confident they feel about the choices they have made. This resource includes 2 tools, which can be adopted or adapted for local use.
This simple tool sets out 4 questions with ‘yes’ or ‘no’ answers. The questions are:
- Sure of myself: Do you feel SURE about the best choice for you?
- Understanding information: Do you know the benefits and risks of each option?
- Risk – benefit ratio: Are you clear about which benefits and risks matter to you most?
- Encouragement: Do you have enough support and advice to make a choice?
2. Pre-dialysis service: patient survey
Developed by the team in Newcastle working on the Health Foundation’s MAGIC programme, this survey is designed to gain people’s views on the discussions they have had with the pre-dialysis Nurse Practitioner, but would be equally applicable in other clinical settings. It sets out a series of statements and asks the patient the extent to which they agree with each. There are also a small number of additional questions. The statements are:
- I was told there was more than one choice for my care and treatment.
- We talked about the pros and cons of each choice.
- I was asked what was important to me in making a decision on my care and treatment.
- I was involved in decisions about my care and treatment.
- I was involved as much as I wanted to be in decisions about my care and treatment.